My beautiful, hectic life as a family of four dealing with Cerebral Palsy.
(See? We have fun! Jillian totally photobombed us!)
Or as I liked to say, I had a holy shit moment today. First, let me back up a bit. I gave a quick rundown on what it was like to be a parent mentor/advisor on a new committee and how absolutely terrified I was at first. Thankfully [...]
Still shot from a Family Leader Video.
Almost 2 years ago, I made the decision to start volunteering with Holland Bloorview Kids Rehabilitation Hospital. The very place where Jillian receives therapy. I felt so strongly and passionately about this hospital and I couldn’t donate a bunch of money to thank them, so I gave something that’s [...]
…To every story. Something I haven’t talked much about is my relationship, or lack of relationship with my parents. I was talking with Rhea the other night when I said I think it’s time to finally just write about it. I’m not even sure what has been holding me back. She suggested that maybe I [...]
From our very quick trip to Nova Scotia- we were lucky to spend some time with our family. It was especially nice to see the girls interract so well with my niece and nephew. It definitely made me wish we lived closer so we could do it more often!
Jillian loved George immediately. Plus, she had [...]
Middle of November already?! Crap. Christmas really is coming and that just proves how unprepared I really am! Today, Adam and I had the privilege to attend both of our girls parent/teacher interviews. Adam took the day off in preparation so we could all go.
We started out our morning at Lauren’s school. We sat with her [...]
Interesting title, yes? When Adam and I decided to expand our small family of 2 and consequently got pregnant with Lauren, all of the typical “what if” questions were asked during our time apart. He was working in Georgia for work and making fun of me for going to bed at 7pm when I was [...]
Raising a special needs child and having many connections within the special needs community, not to mention other parent who have had premature babies, I’m quite familiar with McHappy Day and the Ronald McDonald houses that are available for parents (and relatives to stay) while their children are receiving treatment in a hospital. Thankfully, my [...]
Jillian’s appointment is on Wednesday and from generosity of people (for the most part) I have never met in real life, this is astonishing!! Before Rhea put the auction live yesterday, we had raised $700 in CASH to go towards Jillian’s injections on Wednesday. I keep saying thank you SO many times, and I really [...]
For the second time this week, I have been absolutely speechless. The way you all have rallied around us, my family, my daughter, our struggle. I can’t say enough. I put together a vlog tonight. Please pay no attention to the girl with her hair in a pony tail, half crying and eternally grateful. Thank [...]
Does anyone else remember that song from the late 90′s or did I completely date myself? (You might not want to answer that…I’m fragile) That one song could pretty much sum up my whole entire day yesterday…”You get knocked down, you get up again” So far, I’m still stuck on the knocked down part.
Yesterday was [...]
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