My beautiful, hectic life as a family of four dealing with Cerebral Palsy.
There are a few things to talk about! First, I thought I would give everyone an update on the Botox situation. I haven’t really updated more than just a quick word here or there. Jillian is doing well since the last injections, walking farther, more indurance and practicing on actual stairs. We’ll be re-seen in [...]
Look at these wheels!!! Jillian is SO excited, even though we didn’t start off so hot with the trials. She was adamant she didn’t want a new chair. I’m so proud of her! I heard the biggest giggle EVER from her today when she was too tired to wheel herself, and was holding my hand. [...]
It has taken me a couple days to get my thoughts a little less jumbled! I had a great conversation with another mom whose daughter has dystonia and I knew I needed to get this done sooner rather than later! Poor Adam though, I came on on Saturday full of information that I was still [...]
Today, Jillian and I took off to Holland Bloorview to start trialing wheelchairs for Jillian to begin school. SCHOOL. I might be allowing myself a little freak out about this whole school thing now. I mean, I’m going to have to take up a hobby or a job. Or get a puppy. Pretty sure that [...]
Today was a fairly busy day for me today! For the last 3 months, I’ve been helping to facilitate a peer to peer group for outpatient families at Holland Bloorview. We meet on the last Thursday of every month, and it’s always a crazy day! Today I also signed up to be a part of [...]
Recently Adam came home saying that he got to try one of the new subways. He said they’re wheelchair accessible, and very stylish. But, he mentioned there was a gap that he thought would make it difficult for someone in a wheelchair to cross.
I got to meet the fabulous Tenille from Feisty Frugal and Fabulous a [...]
Today was fun. If you believe in sarcasm! Jillian had an appointment at the seating clinic at Bloorview today. Perfect timing since her present chair hasn’t been adjusted since November. Actually, before then since… I had started bugging our current wheelchair vendor for a growth adjustment since then. Amber (Jillian’s PT) also called to get [...]
While killing some “Me” time at Holland Bloorview yesterday, I came across a flyer for a “Dystonia in Children and Adolescents Information Forum”. I realize that Jillian doesn’t have dystonia, however, I know that some of my readers have children with it. And I was remembering the fact that I managed to do social media [...]
I never get tired of these feet. Jillian got her 3rd round of botox last Wednesday and less than 12 hrs after injections her feet were almost flat on the floor! YAY!
Carrying on with Cerebral Palsy awareness, (remember 2 weeks ago when I thought I had the stomach flu? Well that was a tease and it hit full force last Saturday. I’m still recovering. so fun!) I thought I’d tackle some of the questions I get asked regularly and I also asked friends to submit some [...]
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