My beautiful, hectic life as a family of four dealing with Cerebral Palsy.
If you follow some of the same special needs circles I do, you have probably already seen this picture. And if you haven’t, let me show it to you.
Cute, right? Or not. This is a class picture of Miles Ambridge who is a 7 year old student in British Columbia. I shared this picture originally on my personal Facebook page on Friday. Since then it has spread like wild fire. Frankly I’m sure it comes as no surprise to you [...]
I’m going to warn you now that this post may be long, ranty and discombobulated. Now that that little order of business is straightened let me tell you about our day.
The only apprehension that I had about Jillian starting school was the bus ride to and from. I was questioning whether or not we had made the right schooling decision but not once did I feel stressed about the environment Jillian would be starting school. Our first week was definitely [...]
It’s been a while since I gave a good old fashioned botox update. For good reason, I might add. Jillian’s last injections happened in August. Just in time for her to begin school. We were given a script to fill after 3 months of the last injections and we would do it in house (Holland Bloorview) as opposed to Sick Kids. I dropped the ball (and life got super busy and our trip to Nova Scotia- lame excuse I know)
Last [...]
And why do I keep being surprised?! In a previous post, I wrote about Daniel’s initiative in the Ronald McDonald Playroom. His goal? Engage the clients and their families in ways to make the playroom better in the pilot program. both girls were invited but I had NO idea how Jillian would participate since she was only 3.5 at the time.
The 2nd meeting of the children’s advisory council was held testing the food in the cafeteria. We all tried breakfast/lunch/dinner [...]
(See? We have fun! Jillian totally photobombed us!)
Or as I liked to say, I had a holy shit moment today. First, let me back up a bit. I gave a quick rundown on what it was like to be a parent mentor/advisor on a new committee and how absolutely terrified I was at first. Thankfully now I’ve settled down into my role quite comfortably. I was recently asked to sit on a day long meeting to discuss how we can [...]
Friday was fun! It was the end of March Break for the girls, and since our children had childcare lined up, I had the rare chance to go on a road trip with Anchel and Barb. I debated on if I should go. I am still pretty sore from the car accident and of course, Debbi was with me and she was feeling the after effects as well. True to Debbi form, she pushed me to go and I’m so [...]
I was a little flabbergasted the other night when I realized how long it had been since I last blogged. I’m promising myself to buckle down and write this weekend, I have some great things coming up! It’s still kind of tricky with only having a computer at night, hence the lack of posting, so hopefully that’ll be rectified soon! Normally in March, I flood you with CP awareness posts and this year I just haven’t had time to get [...]
Still shot from a Family Leader Video.
Almost 2 years ago, I made the decision to start volunteering with Holland Bloorview Kids Rehabilitation Hospital. The very place where Jillian receives therapy. I felt so strongly and passionately about this hospital and I couldn’t donate a bunch of money to thank them, so I gave something that’s pretty precious to me, my time.
Shortly after starting, there was a committee coming up revolving around an outpatient electronic health record. Our inpatient population already had an [...]
The last few days have been challenging at best. This is not my typical cerebral palsy post, so I’m just giving you a heads up right now if you’re looking for sunshine and rainbows.
Friday was Jillian’s parent/teacher meeting and just as we were walking out the door, I checked my Facebook. I then read that one of my amazing cerebral palsy mama’s had sadly lost her son in his sleep at 2 years old. I was crushed. (Obviously this isn’t [...]
As part of the National Health Blog Post month, I am still trudging along. Albeit at a slow speed, but I’ll get there eventually!
When I became a little bit more serious in blogging, I had gone to Blissdom Canada in 2010 to learn from the best of the best and get a little bit ahead with my blogging. When I arrived, I told people I didn’t exactly have a niche. Whenever someone asked me what I blogged about, I usually said “whatever. [...]
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